About the DMD Registry
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Action Duchenne UK Ltd is a Registered Charity (#1101971) that is responsible for the DMD Registry. This site is registered under the Data Protection Act (#Z9184356).
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TREAT-NMD is an international initiative bringing together some of the world's leading neuromuscular specialists in a pan-European 'network of excellence' aimed at improving treatment and finding cures for patients with neuromuscular disorders.
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Trial Serve is a service created by Javelin Software for Action Duchenne to register people with genetic disease and run clinical trials.
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Morgan Cole are a 450 strong legal firm that have acted as legal consultants and provided legal advice to Action Duchenne about the DMD Registry.
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Summit plc (formerly VASTox plc) is a leading UK biotechnology company that discovers and develops proprietary new drugs. Summit plc has a broad range of drug discovery programmes including neuro-disorders.
