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Know your gene. Join the Registry.

The DMD Registry has been set up as a tool for research groups to find patients with specific gene variations and other clinical criteria for new Duchenne clinical trials. In 2008 the MDEX team have used the Registry to make contact with patients for the UK exon skipping trial.

Trial Serve Demo

Our registry is powered by Trial Serve a clincal trial and registry management service. View a range example screenshots from result screens, report screens and data visualisation maps.

View demo screens

Our partners

"We will be working in collaboration with Action Duchenne for using the Registry to disseminate information regarding our trials on exon skipping; the registry will also be a very helpful resource for involving patients with other type of mutations, such as for example non-sense mutations, in future trials using drugs such as PTC124.

Prof. Francesco Muntoni. Professor of Paediatric Neurology, Centre for Neuromuscular Diseases, London.

Learn more about our partners

Registration benefits

Action Duchenne

The DMD Registry is sponsored and controlled by Action Duchenne UK Limited (Action Duchenne Ltd), and has been registered under the Data Protection Act (1998).

Treat NMD

The DMD Registry is part of the Treat-NMD Network.

The DMD Registry - Helping to win the race against time