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Trial Serve Demo

Our registry is powered by Trial Serve a clincal trial and registry management service. View a range example screenshots from result screens, report screens and data visualisation maps.

View demo screens

DMD News

  1. December 2004

    Demo Database Built

  2. January 2005

    TrialServe Website Built

  3. February 2005

    TrialServe Demo Completed

  4. March 2005

    Go ahead from Senior Clinicians

  5. April and May 2005

    Legal Documents Drafted and new Website Installed

  6. June and July 2005

    Data Protection Application, Legal and Website Reviewed

  7. August and September 2005

    Database, Legal Documents and Website Finalised

  8. October 2005

    Registry Launched at Action Duchenne Conference in London

    Steering Committee Announced

  9. November 2005

    First Registration Forms are sent to Clinicians

  10. December 2005

    First particpants and entered into the Registry

  11. January 2006

    Presentation of DMD Registry to the Joint Genetics Committee

  12. October 2006

    Presentation of DMD Registry to the International Conference in London

  13. November 2007

    Presentation of DMD Registry to the International Conference in London

  14. December 2007

    DMD Registry enables Self Registration

  15. January 2008

    Self Registration open to Irish, Australians and Norwegians

  16. March 2008

    New Website Look

Action Duchenne

The DMD Registry is sponsored and controlled by Action Duchenne UK Limited (Action Duchenne Ltd), and has been registered under the Data Protection Act (1998).

Treat NMD

The DMD Registry is part of the Treat-NMD Network.

The DMD Registry - Helping to win the race against time